#Kris10, Mission Complete

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I suppose that I should have written this before I hit the target but it felt a little presumptuous.

I now struggle to find the words to convey the joy and relief I feel in hitting the £10,000 #Kris10 target for Leukaemia Care this morning. Thank you is a good start.

It’s taken nearly 11 months and it’s been really, really difficult. The walk and the recent Big Finish auction pushed us hard towards the line but there have been plenty of moment where I felt that I’d bitten off more than I can chew. It’s hard not to take things personally especially when the cause is something so personal. I’ve developed some thicker skin and a newfound appreciation for professional fundraisers. In fact, I just don’t know how they do it, it’s an incredible skill.

Nearly 11 years ago I was diagnosed with leukaemia but you know that story. The story now is about supporting people who are diagnosed with a blood cancer today, tomorrow, next week… Treatment options are improving and we’re making inroads into earlier diagnosis. There is a huge psychological impact on the patient after diagnosis and the emotional impact leaves lots of damage. Leukaemia Care do an incredible job supporting patients and families with the seismic shift a diagnosis brings and this money will make a difference.

Is there a better Christmas gift? We’ll save lives with this and given that you are reading this you are likely to have been part of this story and I genuinely can’t thank you enough for your support.

There’s always a long way to go; work like this will never end and our relentless commitment to making people’s lives better is worth it.

So, take the baton, run a marathon, jump out of a plane, fly down a zip wire or sit in a bath of beans. Go and write your own story. I’m done for now. It’s nap time. Happy Christmas.

www.justgiving.com/kris10

Fundraising…it’s awkward!

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It’s two weeks until the walk. We’re approaching 30 sign-ups for the day with more promises to come through. If each individual/family is able to raise £100 in sponsorship then we could raise nearly £2,000 toward the £10,000 total.

Easier said than done, right? Look, this fundraising lark is much more difficult than I could ever have imagined. Seriously, it’s caused sleepless nights. But it was never meant to be easy. £100 raised in sponsorship, £50, £25, whatever, is money that we have to work hard at. We have to ask friends, colleagues, family and tap into your networks. Without your support, we won’t ever hit that big target.

I’ve been living with leukaemia for 10 years and I’m one of the lucky ones. I’ve been through things that have been tough both mentally and physically. What I’ve learnt is that there are brilliant people out there diagnosing, treating and supporting people with the devastating diagnosis of a blood cancer. The money raised will be going right back into the system and ensure that we are even better at diagnosing and supporting.

I know it’s a pain and I recognise that asking for a charitable donation or sponsorship is completely awkward. There are 650 people diagnosed every year with my leukaemia (CML). Blood cancer is the third biggest cancer killer behind lung and bowel cancer. That moment of awkwardness could potentially save a life. That’s why I’m writing this and gritting my teeth through the awkwardness.

So sponsor me: www.justgiving.com/fundraising/kris10

Or join us, walk 10 miles with us: www.accesscmldrugs.wordpress.com/2018/08/30/charity-canal-walk-looking-for-participants-of-all-ages/

Thank you, Kris

P.S. Thank you to the Worcester News and the Kidderminster Shuttle for their support of the #Kris10 walk.

www.worcesternews.co.uk/news/16683894.join-kris-on-his-canal-walk-to-raise-money-for-worcester-charity-leukaemia-care/

www.kidderminstershuttle.co.uk/news/16683892.residents-urged-to-lace-up-their-walking-shoes-for-kidderminster-man-kris-griffins-charity-challenge/

Birthday Thanks

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Just a huge note of thanks to everyone who donated and sent birthday wishes. I raised £343 towards my #Kris10 campaign. That’s a lot of socks and pants.

We’re fast approaching £2,000 and we’ve taken a step closer to that HUGE £10,000 target.

Never too late to donate. www.justgiving.com/kris10

Big thanks. Kris.

Geoff Thomas & Le Tour team reaches Paris finale

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In 2003 Geoff Thomas was diagnosed with chronic myeloid leukaemia (CML) and was given less than three months to live. Following treatment from Cure Leukaemia co-founder Professor Charlie Craddock, he has been in remission since January 2005. I was diagnosed in 2008 and received a very different treatment path, also from Professor Craddock. Geoff received a transplant and I take the drugs, we both understand how lucky we are to still be here.

I’m a football fan, so at first it was a thrill to meet Geoff. As the time has passed my admiration for him as a man and as an incredible charity fundraiser has grown. I’m blessed to know him, I love catching up with him, we put the world to rights and I’ve watched with pride as his Le Tour vision has taken shape.

CML survivors Geoff Thomas and Kris Griffin

Geoff Thomas and Kris Griffin

To celebrate being 10 years in remission his aim is to raise a huge £1million for Cure Leukaemia after riding ‘Le Tour – One Day Ahead’ and London 2 Paris. The £1million raised will go towards boosting the life-saving work at the Centre for Clinical Haematology at the QE Hospital – where he and I were treated by Professor Craddock. The money will increase the centres ability to deliver pioneering treatments for blood cancer patients at this centre of excellence in Birmingham.

So, last month Geoff cycled all twenty-one stages of the Tour de France, just one day ahead of Le Tour 2015. Along with a closed group of twenty participants, it was a once in a lifetime opportunity to complete one of the toughest physical challenges around.

Le Tour – One Day Ahead set off from Utrecht, Holland, on July 3 and since then each cyclist burned around 95,000 calories and climbed 40,000 metres in pedalling almost 2,100 miles. The team had to contend with 40-plus degree heat, wall-like ascents and frightening mountain-top thunderstorms in riding an average of 110 miles a day.

Geoff was joined by Birmingham-based duo Melissa Brand, aged 35, and Stephen Jones, 53, James Maltin, 39, of Wiltshire, Doug McKinnon, 55, from Brighton, Hayden Groves, 41, of Hertfordshire, Guildford-based Ciaran Doran, 49, Trevor Clarke, 49, from Rugby, Simon Gueller, 50, from Yorkshire, Dom Goggins, 30, of Manchester, and Helen Russell, 39, from Bromsgrove in riding the punishing Tour de France route, cycling each of the 21 stages a day before the professionals.

Helen and James required stitches after crashes during an eventful first week while Simon took on Le Tour just three weeks after suffering a collapsed lung and broken ribs and Doug had ongoing knee problems. The support staff were also kept busy treating dehydration, saddle sores, sickness and blisters to keep the riders on their bikes as they were pushed to the limit.

The team’s superhuman efforts have pushed Geoff’s fundraising total for Cure Leukaemia – the blood cancer charity he is Patron of and owes his life to – past the £650,000 mark. Le Tour – One Day Ahead followed hot on the heels of Geoff’s other major cycling challenge this summer, London 2 Paris. Both are flagship events in his bid to raise £2million for Cure Leukaemia inside two years.

A slightly controversial decision to ride two of the stages with former pr-cyclist Lance Armstrong has also been vindicated. Armstrong played a critical role in Geoff’s leukaemia battle, with the cyclist having beaten testicular cancer. Geoff was inspired by Lance Armstrong’s book It’s Not About the Bike: My Journey Back to Life and inspired Geoff to make the 2005 charity ride along the route of the Tour de France. Whilst not condoning his actions there has to come a point when we put the knives down and give people an opportunity to earn forgiveness. Armstrong raised over $500million dollars for his own charity and if his current actions mean that he is bringing publicity and donations to Le Tour then I don’t have a problem with that. It’s not a matter of principle, this one’s a matter of saving the lives of leukaemia patients and people like, UCI President, Brian Cookson could probably do with reminding themselves of that.

Former England footballer Geoff Thomas before setting off on London 2 Paris.

We’re raised over £650,000 now and have set some really good foundations for next year and reaching that overall £2million target. London 2 Paris is only going to grow for Cure Leukaemia and Le Tour – One Day Ahead has gone worldwide. We’ve had so many people enquire about next year’s event that we might need a double-decker bus to fit the team in! Lance’s involvement has been central to that. It allowed us to put our message onto the world stage. People are more aware of what we’re trying to do and it’s up to me now to build on the foundations and raise a lot more awareness and money over the next five or ten years.

For the record, Geoff did his very best to persuade me to join him, he was serious too, he always is when it comes down to fundraising. In my current state of fitness and aversion to bikes I had to decline. I explained that I’m more suited to the advocacy side of our work but he wasn’t having any of it. Can I see myself cycling 2,200 miles? No, but you never say never. And if anyone were to persuade me if would be Geoff.

Please sponsor Geoff, not only is his achievement an incredible one but the money is going to such a great cause, it actually makes me emotional thinking about it. You simply don’t realise how lucky you are until you sit in a cancer clinic, looking around, waiting and realising that much of it is built on charitable donations from amazing people. Please donate…

To sponsor Geoff, visit: www.justgiving.com/Geoff-Thomas-2015

To register your interest for Le Tour – One Day Ahead 2016 visit: www.beforethetour.com

Cure Leukaemia was established in 2003 to allow patients with blood cancer in our region to access the remarkably effective new treatments which were then becoming available. To find out more please visit: www.cureleukaemia.co.uk

Le Tour 2015 finish line

The ex-England footballer and his team of ten amateur cyclists brought their brutal 3,360km ride to an end when they crossed the finish line under the shadow of the Eiffel Tower on Saturday afternoon, via the Arc de Triomphe and Champs-Elysees.

Leukaemia & Lymphoma Research Impact Day 2014

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It might seem crazy what I’m about to say

Sunshine she’s here, you can take a break
I’m a hot air balloon that could go to space
With the air, like I don’t care baby by the way

Happy by Pharrell Williams

There was a definite happy vibe at Leukaemia & Lymphoma Research’s Impact Day yesterday at the Tower Hotel in London. Impact Day is the charity’s annual conference, with a difference. It’s clearly deigned to have an impact on the audience. It did just that! The delegates made up from fundraisers, patients, carers, researchers, Doctors, clinicians, nurses, family members and staff from the charity, were given a blast of progress. What progress! I lost count of the number of times the word ‘cure’ was used. There is a genuine belief that they are the cusp of greatness and whilst looking back at the roots of the charity it truly felt we were standing on the shoulders of giants.

The countless lost to blood cancer over the years has not been in vain, not a bucket rattle wasted and not a clinical trail regretted. We heard about the progress in Childhood Leukaemia (Professor Christine Harrison), Acute Myeloid Leukaemia (Professor Paresh Vyas and Advanced Nurse Practitioner Kirsty Crozier) and Chronic Lymphocytic Leukaemia and Lymphoma (Professor Chris Pepper). Matt Kaizer, Chris West and David Henderson all spoke, with great conviction, about the role of the charity in research, policy and insight respectively. It’s great to see Leukaemia & Lymphoma Research taking policy and insight so seriously, both done well will save lives, albeit in a different way to research; equally important though.

The audience, which was considerably larger than last year, hung on every statistic and anecdote. There were tears and there was admiration. Particular memories for me included the progress in childhood leukaemia where survival rates are now over 90% and the passion in which Kirsty Crozier spoke about her ‘calling’ as a Nurse. It was good to hear Professor Pyas say that the Cancer Drugs Fund has been, “transformational” and Professor Pepper suggest that the best way to make drugs affordable is to create competition in the marketplace. It certainly gives me renewed vigour in hearing that.

A chap called Kris Griffin (!) spoke about patient support and the new online patient services being offered by the charity and Dr Peter Campbell who is Head of Cancer Genetics and Genomics at the Wellcome Sanger Institute gave the audience an insight into individually tailored treatment plans. The progress is more than a little mind-blowing, costs are reducing as is the time taken to sequence; the impact on patient treatment immeasurable.

The day was hosted impeccably by Professor Chris Bunce, whose must surely be a shoo-in to replace Brucie on Strictly, such is his calm, smiling, brilliant demeanour. The day was rounded up perfectly with a closing address by Chief Executive Cathy Gilman who summed up with ease and grace. The hope. The joy. The memory of those that we have lost. The joy that we are step closer to a cure.

Life is a gift. Use it wisely and live it fiercely.
Cathy Gilman

Each loss hurts more now. That we are so close means the pressure is truly on. I can hear buckets being rattled harder, more cakes being baked, running further, cycling harder. To hope. True impact. With heartfelt thanks to everyone, everyday. More happy days.

And all this from a charity who started, quite humbly, in 1960. A seemingly impossible task. This is just the start. Beware cancer, we’re coming for you!

Kris Griffin (middle) with the Patient Services team and CEO Cathy Gilman from Leukaemia & Lymphoma Research at Impact Day 2014

Kris Griffin (middle) with the patient services team and CEO Cathy Gilman from Leukaemia & Lymphoma Research

Off topic: fundraising

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It’s my birthday today (21st May) and what better way to launch my latest fundraising venture, now don’t groan. Of course I do it on purpose.

Turns out I’m a bit fat. No please don’t disagree…honestly…no…oh you are too kind. But seriously I need to shed some timber; a significant amount it turns out.

It appears I’m too fat to ride a horse at CentreParcs and also too fat to take a lesson in a small helicopter. Clearly both modes of transport will buckle under my enormous weight. I was a little angry to start with but I’ve since used the anger to motivate myself. The plan is to fly a helicopter and ride a horse, obviously not at the same time, neigh, unless horse is feeling particularly daring and then of course I’m up for it.

I need to lose 2 stone (28 lbs) to get down to 15.5 (217lbs)…yes, yes I’m 17.5 stone (245lbs) – WHATEVER!

So sponsor me. I’m doing it for Leukaemia Care who are a wonderful charity that supports blood cancer patients. If you didn’t know I was diagnosed with leukaemia over 5 years ago and am doing OK.

So let’s get this show on the road…I’ll have salad with that.

http://www.justgiving.com/kris-griffin

CML Aide Memoir free download

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Just a very quick post, I wanted to make available an Aide Memoir I’d produced for the CML Horizons 2013 conference in Prague. It contains some hints and tips on becoming connecting using social media and has some good CML website links on it.

A big thank-you to Lisa from One of A Kind Creative who put this together for me.

Kris

CML Aide Memoir Download

Leukaemia and Lymphoma Research Impact Day 2013

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It was all about the ‘c’ word wasn’t it? No not cancer, the other one. Yes, CURE.

We had to wonder what Leukaemia and Lymphoma Research (LLR) were up to when it was announced they weren’t going to have an annual conference this year and instead have an Impact Day. What would the impact be? Were we simply victims of yet another marketing experiment to re-brand what we already knew? No. This was a day filled with hope, emotion, researchers, scientists, (the) Calendar Girls, volunteers, patients and the amazing staff at LLR. Credit has to be given to, Chief Executive, Cathy Gilman who has energised the charity, brought everyone together and invested in a challenging vision.

There was a distinct split between the morning and afternoon sessions and the morning documented how far blood cancer treatment had come. The day opened with the inspirational Daisy Turner, a transplant patient now in remission, who set the scene. I was privileged to have been asked to speak along with another patient Federica Nardella, a lymphoma patient. We provided the personal stories, first hand, for Dr Emma Morris and Professor David Grimwade, research scientists for LLR, who are the most engaging, lovely people you could wish to meet. We spoke about the magnificent treatment advancements, in particular the targeted therapies which are saving lives, like mine, and revolutionising the blood cancer battle. It was a humbling moment for me to be able to talk to an audience of fund-raisers and supporters whose efforts saved my life and given me a son. Only through the hard work of professionals like my consultant Charlie Craddock, Dr Emma, Professor David and Research Director of LLR, Chris Bunce, I got my life back. I’m just one voice, there are thousands. It’s that important.

It was fiercely obvious the afternoon was about business, not the dull stuff bathed in facts and figures, but where the charity is going next. Even though treatment has been revolutionised: more and more patients are being treated successfully, dare I say cured, the charity told us they are steadfast in not stopping until everyone is saved. I was particularly captivated by one of their mission statements which proclaimed, “We stop people dying from blood cancer“. Brave, bold and scary all at the same time. All of the work and methodology over the next 5 years is heading towards finding cures, making the lives of patients better and being daring. Yoda in the The Empire Strikes Back said, “Do or do not, there is no try” – whilst proving my geek credentials I also believe this is the direction LLR are taking. There is no middle ground here, they will either cure blood cancers or they won’t. If they don’t the progress made whilst trying is worth the effort and contemplation alone.

So at last we have a charity who are trying to do what is said in their literature: beating blood cancers. The room was invigorated, people filed out with renewed drive and determination. I felt like we were all part of something very special and what made this extra special was that there wasn’t a politician or bureaucrat in sight telling us we couldn’t do it. I don’t think they’d dare. There was grit and conviction and most importantly belief. Bravery too and the courage to make a real Impact on a perfect Day.

Leukaemia Care Conference 15 June 2013

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Leukaemia Care are now taking bookings for the next Patient and Carer Conference in Worcester! Visit the website for more info, and to download the booking form:

http://www.leukaemiacare.org.uk/care_support/patient_carer_conferences

15th June 2013 –  Worcester (Sixways Stadium) – Patient and Carer Conference

I’ll be talking at this event so hopefully see you there.

Kris

Leukaemia Care Conference

Leukaemia Care Conference

Event: Leukaemia and Lymphoma Research Impact Day 13th April 2013

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I’ll be speaking at this free event so please come and say hi if you spot me. Thanks, Kris

“We won’t be satisfied until every patient with blood cancer can live fully the life that they were given; a life where the diagnosis of a blood cancer has no impact.

In the 53 years since we started the journey to beat blood cancer, our mission has never been clearer: we stop people dying from blood cancer; we make patients’ lives better and we stop people getting blood cancer in the first place.

In 2013, thanks to the collaborative efforts of many throughout the world, survival has improved dramatically since research began in blood cancer, but there is still work to be done both in saving more lives and minimising the impact on the quality of life of patients before and after treatment.

Join us in London on 13 April to hear how we are doing, meet some of the amazing people involved and discover why there has never been a better time to make a positive impact on the world.”

Event details

Date: Saturday, 13 April 2013
Time: Starts at 9:00 am

Location:
Tower Hotel
St Katharine’s Way
London
E1W 1LD

http://leukaemialymphomaresearch.org.uk/event/special-events/impact-day-2013

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