Kidderminster Event: The Lady and the Sax

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A night of music is coming to the Kidderminster Cricket Club as talented local duo The Lady and the Sax support a Kidderminster man’s fundraising.

Kris Griffin is taking on a year of fundraising in celebration of reaching his 10-year anniversary since being diagnosed with chronic myeloid leukaemia (CML). All proceeds raised will be donated to Leukaemia Care, a national charity based in Worcester who supports anyone affected by a blood cancer diagnosis.

Kris said, “As well as being a huge cricket supporter, my son Luca plays at the club, so I’m delighted that Kidderminster Cricket Club is supporting my campaign to raise £10,000 for Leukaemia Care.

The support I’ve received from people across Wyre Forest has been incredible and I know that this will be a great night of music that everyone will enjoy.

There’s a long way to go to reach that magic £10k mark but we’ve started strong; every penny will make a difference and save lives. It really is that important.

So far, Kris has raised over £1,600 of his £10,000 target and hopes a night of music from The Lady and the Sax will help him on his way to his ambitious target. The funds raised from tickets sales will be split 50/50 between Leukaemia Care and Kidderminster Cricket Club Juniors.

The event will take place on Friday 29th June and starts at 8:30pm. Tickets are £8 and can be purchased at the club or by calling 07841 502535.

If you’d like to make a donation to Kris’ fundraising, head to his JustGiving page: https://www.justgiving.com/fundraising/kris10.

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Birthday Thanks

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Just a huge note of thanks to everyone who donated and sent birthday wishes. I raised £343 towards my #Kris10 campaign. That’s a lot of socks and pants.

We’re fast approaching £2,000 and we’ve taken a step closer to that HUGE £10,000 target.

Never too late to donate. www.justgiving.com/kris10

Big thanks. Kris.

Happy birthday to me!

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Happy birthday to me, happy birthday to me, Happy birthday dear me, happy birthday to me.

That all sounds rather self-congratulatory but I’m using my birthday as a weapon to raise money so I’m vindicated, forgiven and a year older.

Ten years ago when I was diagnosed with chronic myeloid leukaemia (CML) I wasn’t sure if I was going to live to 33 and now ten years later, I’m still here age 43; pretty good at maths too!

To celebrate the ten years since diagnosis (or as the Bee Gees would say, Stayin’ Alive), I’ve set myself a challenge to raise £10,000 for Leukaemia Care, the Worcester-based national charity that I’m a trustee of. The money will be spent training more GPs about the signs and symptoms of blood cancer. It will save lives.

So instead of showering me with gifts and cards this year, I’m encouraging you to throw money at me. That’s right, I’m making the ultimate sacrifice and giving up my birthday. No new socks and pants this year but we all get a warm and fuzzy feeling for doing the right thing.

Also, I got a target to hit, that £10,000 isn’t going to raise itself. So, join me, in wishing me, a happy birthday. Donate at www.justgiving.com/kris10 or text KTEN99 £5 to 70070 to donate £5.

All together now…for he’s a jolly good fellow…

One Week In For #Kris10

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We’re a week in, only 51 weeks left to go! If you haven’t donated yet there’s plenty of time.

Nearly £900 of donations have come in, we’re approaching 10% of our target. I’m absolutely delighted and send my thanks and appreciation to everyone who has supported me so far.

Plans are coming together for a 10-mile walk on the 23rd September, the day after world CML day. We’ll start in Worcester and walk to Droitwich. As soon as we open sign-up, I’ll drop a message. Keep that date free!

Tickets are selling for the concert at the Cavern Club and we haven’t even announced any acts yet! More to come on that too. It’s on the 1st November and you can buy tickets now: http://bit.ly/CavernClubKris10.

The local media have been incredibly supportive, click the publication to open the story:

Kidderminster Shuttle
Worcester News
Express & Star

I’ve also been interviewed by my good friend Cavan Scott who is a number one best-selling author and comic writer for both adults and children. You can find the interview here: http://bit.ly/2o73ofl

If you can help me reach my £10,000 target through supporting any of the events, donating or getting involved, please contact me or visit www.justgiving.com/kris10.

To follow my story and to find out more about the fundraising, search online using the hashtag #Kris10.

Thank you. Kris

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I’m celebrating a decade since diagnosis with £10,000 fundraising goal!

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I was diagnosed with Chronic Myeloid Leukaemia (CML) in 2008, aged 32, after visiting my GP with symptoms such as night sweats and pain in my hip. A blood test went on to reveal a leukaemia diagnosis which had me asking the question, “Am I going to die?”

When you’re told you have a leukaemia, or a blood cancer, or some other terrible disease, you never forget what being told feels like. There’s a ringing in the ears, everything just drains out of you. You just feel like you’ve been punched, really hard, but you feel no pain.

Now ten years on, I’m a marketing expert, blood cancer charity trustee and a passionate campaigner working with fellow leukaemia patients across the world seeking access to treatment. I’m also a seasoned public speaker, I recently spoke at a training day for 40 West Midlands GPs to help them understand what a blood cancer diagnosis feels like from a patient perspective.

The diagnosis made a huge difference to my life. Clearly, I could do without it, but it has made me a better person, I’ve no doubt about that. It’s made me recognise the important things in life.

To celebrate ten years since diagnosis, I’ve set myself a challenge to raise £10,000 for Leukaemia Care, the Worcestershire-based national charity that I’m a trustee of. I am also donating 10 days of my time to help support the charity, from marketing support to holding live webinars for anyone affected by a blood cancer diagnosis.

One of my key events in this year of fundraising will include a gig which is being held at the Cavern Club in Liverpool on 1st November 2018. As a huge Beatles fan, I was delighted when the Cavern Club gifted the space to hold the fundraising event. Other fundraising ideas include a 10-mile walk and donating my birthday to the charity in lieu of presents.

Nicole Scully, fundraising manager for Leukaemia Care said, “Kris is a fantastic example of somebody who is living well with a blood cancer. Kris is using his own strength to support others who sadly may not be living as well as he is. His fundraising pledge is a huge boost to the charity and will enable us to train more GPs about the signs and symptoms of blood cancer, support haematology nurses and continue to fund our support services for patients. We’re really excited to see how Kris’ year pans out.”

Tickets for my charity gig in Liverpool are now available through the Cavern Club website http://bit.ly/CavernClubKris10.

To follow my story and to find out more about the fundraising, search online using the hashtag #Kris10, follow Leukaemia Care on social media or visit the JustGiving page: www.justgiving.com/fundraising/kris10.

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Patient Experience Survey

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The 2017 patient survey from Leukaemia CARE is now live and they need your help to improve the experience of blood cancer patients!

In 2016, Leukaemia CARE partnered with Quality Health to develop the 2016 blood cancer patient experience survey. 2,519 patients shared their experience of blood cancer from diagnosis through to living with and beyond cancer.

This survey has helped to provide evidence to the extent of issues faced by blood cancer patients in the UK and inform the work at Leukaemia CARE. The leukaemia-specific findings and subsequent recommendations for improvements were highlighted in the ‘Living with Leukaemia’ report – those relating to diagnosis were used to inform the #SpotLeukaemia campaign for blood cancer awareness month.

This year Leukaemia CARE’s patient survey is running again from September through to Saturday 16th December and I want you to share your blood cancer experience.

The 2017 patient survey aims to:

1. Provide a deeper understanding of the issues faced by blood cancer patients, particularly those diagnosed with rare types of blood cancer.

2. Give a greater picture of regional differences between patient experiences.

3. Understand which patient experience issues are getting worse by comparing results to those from 2016 – this will then prioritise the focus of future campaigns.

With your help, Leukaemia CARE will have a greater understanding of the issues faced by blood cancer patients. This will help direct their future work and bring about changes where they are most needed.

Share your experience. Inform the work. Improve the future experience of blood cancer patients.

TAKE THE SURVEY – CLICK HERE

If you would like to request a hard-copy of the survey, please call 01905 755977 or email advocacy@leukaemiacare.org.uk

Professor Tessa Holyoake Memorial

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The loss of Professor Holyoake is a massive blow to the CML community and a sad loss to her family. Below, you can find a link to a page of remembrance.

Professor Holyoake was a world-leader on Chronic Myeloid Leukemia (CML) achieving outstanding results in CML. Through her research, she developed methods to purify the cells of leukaemia patients. Her most recent study analysed both CML and normal blood stem cells and the key to the survival of CML stem cells. The team led by Professor Holyoake then developed a drug combination to simultaneously target these critical proteins and kill the CML stem cells.

The page will be collated with comments from CML patients all over the world. Most won’t have known her, but many will have benefitted from her work.

It would be nice to show our appreciation, the tributes and photos will be used in a Memorial Book for her family.

Thank you. Kris

www.cmladvocates.net/professor-tessa-holyoake-memorial

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