Early next year it’ll be 7 years since I was diagnosed with Chronic Myeloid Leukaemia. I was 32.

Today is World CML Day. The story goes that, for no reason, two of my chromosomes had broken, swapped over and created a new, naughty, one called the Philadelphia Chromosome. This sent rubbish message to my body and could have easily killed me . My white blood count was 192 on diagnosis. It should have been 7.

The (nearly) 7 intervening years have been life changing. I grew up a lot. Got married. Had a son. Fund-raised. Lobbied government. Met great people. Got better. And became a better person.

For me and a small amount of people it’s CML day every day. There are only 650 of us newly diagnosed in the UK every year. But the breakthroughs being made in the CML world have implications on cancer treatment everywhere.

I’m treated daily with two small white tablet called dasatinib. They’ve put me back together. Two small white tablets are treating my cancer. All being well I should have normal life expectancy. My hopes and dreams, outside of Luca playing for Norwich one day, are that all cancers can be treated and cured with two small white tablets. Imagine that. That’s why I keep working, volunteering and supporting, we’ve achieved so much but there is still a long way to go.

Thanks to everyone who has helped me on my journey. I’ll finish with three photo, possibly the three biggest moments in my life – all three happened after diagnosis. Have a great day everyone. K.

Wedding Day

Wedding Day

Luca was born

Luca was born

Major molecular response to CML

Major molecular response to CML

 

 

 

 

 

 

 

 

 

 

 

#‎worldcmlday‬ ‪#‎leukemia‬