I have created this place to bring CML (Chronic Myeloid Leukaemia) patients, families, friends and carers together to put pressure on various bodies to ensure ALL drugs used for CML are available to ALL patients; so that our consultants are able to prescribe without having their hands tied by bureaucracy.

The aim of the group will be to undo the damage caused by NICE (National Institute for Health and Clinical Excellence) by doing the following:

  • Lobby Parliament and your local MP for their support.
  • Put pressure on NICE to reverse or reinvestigate their decisions and processes.
  • Put pressure on Bristol-Myers Squibb (BMS), makers of dasatinib, to offer a Patient Access Scheme (PAS) thereby reducing the cost of their drugs.

The group will encourage influential parties to write letters and show their support publicly.

The group will write letters and participate in organised, peaceful demonstrations and lobbying events.

It is my hope that the group will obtain the support of Leukaemia charities, however it will act independently and take a cross-agency approach to all work.

The group will not solicit funds. The group will not make charitable contributions or pay anyone affiliated with it in any way. It is a voluntary organisation.